With the One-On-One Kidney Transplant Education Program (Program)
In 2005, The National Institute of Transplantation (NIT) developed a unique education program for dialysis patients around the treatment option of transplantation, utilizing personalized, one-on-one instruction by specially trained transplant recipients.
Since its inception, this education program has been provided at dialysis centers and seeks to help patients who are undergoing dialysis to gain the knowledge and understanding that is needed to make an informed decision about transplantation, including the life-long responsibility of post-transplant care. This program also seeks to help patients learn how to take an active role in their care, which is crucial in maintaining a transplanted organ.
Goals of the Program:
- To inform the dialysis patient of the treatment option of transplantation
- To inform the patient about their personal responsibility in caring for a transplanted organ
- To empower the patient to become more proactive and self-sufficient in his or her healthcare
- To increase knowledge about living donation
Kidney Transplant Video Novela Project (Project)
The Kidney Transplant Video Novela Project, also referred to as the Fixing Paco Study, is a direct result of lessons learned from providing the One-on-One Program to dialysis patients. Based on patient evaluations and feedback from peer educators over time, MNIT developed a deep understanding of the educational needs of Latino/Hispanic dialysis patients in terms of learning more about transplantation.
Determining that culturally sensitive, non-conventional educational tools were needed, MNIT created Fixing Paco, a telenovela style DVD series about kidney transplantation. Fixing Paco aims to inform dialysis patients and their families about the entire kidney transplant process, and teaches patients how to be proactive in their healthcare. Through using an entertaining format, Fixing Paco effectively communicates the essential information that patients on dialysis desperately need to know prior to deciding to have a transplant. Fixing Paco was filmed in both Spanish and English and was funded by a grant from the UniHealth Foundation.
When it launched, the Project included an evaluation component to assess the DVD series’ impact on viewers’ knowledge, attitudes, and beliefs about transplantation. Jennifer Unger, Professor of Preventive Medicine at USC Institute for Health Promotion and Disease Prevention, led the evaluation to determine the program’s effectiveness. The evaluation at dialysis centers included the completion of a survey by participating patients and their family members before receiving the Program, and after completing the Program. The research assistants were bilingual and certified by the USC IRB and Office of Compliance to conduct research with human subjects.
Description of Novela Series (Fixing Paco)
Fixing Paco follows the fictional Fuentes family and their triumph in battling kidney failure. Paul Rodriguez, renowned stand-up comedian and actor, plays Paco Fuentes, a dialysis patient who must decide if he wants to undergo a kidney transplant. Throughout his journey, he must weigh several factors, including his aunt who had a kidney transplant that failed due to non-compliance and whether or not to accept a donated kidney from a family member. He must also learn to become proactive and compliant in his healthcare. Rodriguez’s feature film credits include, D.C. Cab, Born in East L.A., Tortilla Soup, Rat Race, and Ali. Soledad St. Hilaire, who appeared in Real Women Have Curves, portrays Paco’s aunt, Tia Julia. The series also stars Emmy winning actress Marabina Jaimes, who plays Carmencita, Paco’s wife.